Support Sites

supporting disabled children

Kelly Anne Dolan Memorial Fund - The Kelly Anne Dolan Memorial Fund advocates for families with seriously ill, physically and cognitively challenged, or severely injured children nationwide through information and education. Financial assistance for needs not covered by insurance is provided to families whose children are living in or cared for in Pennsylvania, New Jersey, or Delaware. http://www.kadmf.org/

Children's Organ Transplant Association - COTA exists to assist patients who require a life-saving organ, bone marrow, cord blood or stem cell transplant. COTA works with any patient who needs a transplant due to a genetic disease such as Cystic Fibrosis or Sickle Cell Anemia, and all patients 21 and under for any disease complication.
http://cota.org

Mitsubishi Electric America Foundation - Mitsubishi Electric America Foundation (MEAF) is the corporate foundation of the Mitsubishi Electric group companies in the United States. MEAF works to make Changes for the Better in society by investing in innovative strategies to empower youth with disabilities to lead productive lives.
http://www.meaf.org/

Danny's Team - Located in New Hampshire, Danny's Team is an independent, nonprofit organization intentionally set up to be free of restricting red tape and unhampered in its appropriation of funds to organizations or individuals.
http://www.dannysteam.org/

Dateable - A dating service with heart that's why we are here. DateAble is a unique non-profit social organization for people with and without disabilities who seek new friends and relationships.
http://www.dateable.org/

Beyond Play - Beyond Play offers you the most extensive selection of products for young children of all abilities - from infants and toddlers to children in the early elementary grades. We carry a wide selection of fun and educational products in all areas of child development, as well as specialized products for early intervention and special needs.
http://www.beyondplay.com/

Earobics - If a child is not able to read by the end of third grade, the odds are great that he or she will never catch up. And the effects of falling behind can be devastating.
http://www.earobics.com

Disability Resources.org - A wonderfully well-organized site ... for cutting through the morass of disability-related material on the Web.
http://www.disabilityresources.org

The American Academy of Allergy, Asthma & Immunology - The American Academy of Allergy, Asthma & Immunology (AAAAI) is a professional organization with more than 6,600 members in the United States, Canada and 72 other countries. This membership includes allergist / immunologists, other medical specialists, allied health and related healthcare professionals-all with a special interest in the research and treatment of allergic and immunologic diseases.
http://www.aaaai.org

Kidpower - Kidpower Teenpower Fullpower International, known as Kidpower for short, is a global nonprofit leader in personal safety and violence prevention education, which has served over two million people of all ages and abilities across six continents, since its founding in 1989. Instead of using fear to teach about violence prevention, the Kidpower Method makes it fun to learn to be safe, building habits that can increase the safety of young people and adults alike and that can last a lifetime.
http://www.kidpower.org

LD Online - LD OnLine.org is the world's leading website on learning disabilities and ADHD, serving more than 200,000 parents, teachers, and other professionals each month.
http://www.ldonline.org

YAI Network - Since 1957, the YAI Network has been providing hope and opportunity to people of all ages with developmental disabilities and their families. Our organization includes more than 450 programs and serves more than 20,000 people every day.
http://www.yai.org

Indian Children's Program - The Indian Children's Program (ICP) strives to provide responsive, family-centered and community based services for Native American children with known or suspected disabilities. ICP programs embrace the spirit of cultural diversity, collaboration and innovation. ICP works to improve the quality of services for Native American children with special needs by facilitating integrated development of family and community capabilities and resources.
http://www.icpservices.org/index.php

Attention Deficit Disorder Association - The Attention Deficit Disorder Association provides information, resources and networking opportunities to help adults with Attention Deficit Hyperactivity Disorder lead better lives. We provide hope, empowerment and connections worldwide by bringing together science and the human experience for both adults with ADHD and professionals who serve them.
http://www.add.org/

American Self-Help Clearinghouse - This guide has been developed to act as your starting point for finding every type of national, international, model and online self-help support group that is available. The self-help groups, contained in the database that you can access by keyword in the box at the bottom, can help you find and/or start a support group in your community. Local self-help group clearinghouses can also often help you find or form a group.
http://www.mentalhelp.net/selfhelp/


children's disability benefit center

FacingDisability.com - These websites are good places to begin to learn about the core basics of spinal cord injuries. The Short List constitutes an introduction to spinal cord information, institutions and the disability community.
http://www.facingdisability.com/spinal-cord-injury

Family Education Network - the best of the Internet's content, resources, and shopping for parents, teachers, and kids. Launched in September, 2000, the company's mission is to be an online consumer network of the world's best learning and information resources, personalized to help parents, teachers, and students of all ages take control of their learning and make it part of their everyday lives.
http://www.familyeducation.com/

FODAC - Over the years, our programs have evolved to include free or low-cost wheelchairs and other durable medical equipment, vehicle and home adaptations and more.
http://www.fodac.org/programs/

Paralysis Resource Center - Any time a family member becomes paralyzed, your world turns upside down. A new set of stressors enter your life and the world as you knew it is changed. When this happens to your young child or teen, it can seem overwhelming. As a parent of a young child or teen with paralysis, you need to focus on a number of areas of your child's life.
http://www.christopherreeve.org/site/c

Parent to Parent - Parent to Parent support - the matching of experienced, trained Support Parents with families seeking support has been proven effective in helping families cope with their day to day lives, connect with community resources and navigate the health care system.
http://www.p2pusa.org

Family fun and disability support - Disabilities force families to face extraordinary challenges and have extraordinary needs, and they deserve extraordinary support.
http://www.family-friendly-fun.com/

Center on the Social and Emotional Foundations for Early Learning (CSEFEL) - Focused on promoting the social emotional development and school readiness of young children birth to age 5.
http://csefel.vanderbilt.edu/index.html

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Support Sites Resource Page

Places to chat, find support, more information and other important subjects of interest will be found on this page. As with the other pages on this site, the page will continue to grow in the number of resource made available. Please feel free to contact me with submission ideas.

Asperger syndrome - is an autism spectrum disorder (ASD), one of a distinct group of neurological conditions characterized by a greater or lesser degree of impairment in language and communication skills, as well as repetitive or restrictive patterns of thought and behavior. Other ASDs include: classic autism, Rett syndrome, childhood disintegrative disorder, and pervasive developmental disorder not otherwise specified (usually referred to as PDD-NOS). Unlike children with autism, children with AS retain their early language skills.
http://www.ninds.nih.gov/disorders/asperger/asperger.htm

Autism Spectrum Therapies - Our team of clinically strong, compassionate professionals is committed to a single goal: helping individuals with developmental needs of all ages achieve their full potential.
http://www.autismtherapies.com/

CHARGE Syndrome Foundation - The mission of the CHARGE Syndrome Foundation is to provide support to individuals with CHARGE syndrome and their families; to gather, develop, maintain and distribute information about CHARGE syndrome; and to promote awareness and research regarding its identification, cause and management.
http://www.chargesyndrome.org/

Grants for Autistic Children - Foundations and groups that help children with autism.
http://www.squidoo.com/grants-for-autistic-children#

National Fragile X Foundation - Fragile X is a genetic disorder that is caused by a break or weakness on the long arm of the X chromosome (females have two X chromosomes and males have one X and one Y). The gene where the break or weakness has occurred has been named FMR1 (Fragile X Mental Retardation-1). http://www.fragilex.org/

The Assistance Fund - Co-pays. Deductibles. Insurance Premiums. Call them what you will, they often stand between access to greatly needed medications and the patients who desperately need them. And although a disease may be chronic, the inability to access life-giving medications should not be. The Assistance Fund provides financial support to patients who are critically or chronically ill in order for them to receive their life-saving, high-cost medications.
http://theassistancefund.org

International Rett Syndrome Foundation - The core mission of the IRSF is to fund research for treatments and a cure for Rett syndrome while enhancing the overall quality of life for those living with Rett syndrome by providing information, programs, and services.
http://www.rettsyndrome.org

The Childhood Apraxia of Speech Association of North America - The mission: To strengthen the support systems in the lives of children with apraxia, so that each child has their best opportunity to develop speech.
http://www.apraxia-kids.org

Childhood Cancer Guides - Our organization is part of a larger community of people who love someone who has or had childhood cancer. Strong bonds of caring, shared experience, and support tie our group together.
http://www.childhoodcancerguides.org

ACOR - ACOR is a unique collection of online cancer communities designed to provide timely and accurate information in a supportive environment. It is a free lifeline for everyone affected by cancer & related disorders.
http://www.acor.org

MedlinePlus - MedlinePlus is the National Institutes of Health's Web site for patients and their families and friends. Produced by the National Library of Medicine, it brings you information about diseases, conditions, and wellness issues in language you can understand. MedlinePlus offers reliable, up-to-date health information, anytime, anywhere, for free.
http://www.nlm.nih.gov/medlineplus/

The Tomorrow Fund - The Tomorrow Fund was founded in 1985 to ease the traumatic financial and emotional effects of childhood cancer. Our founders - a group that included doctors, child life specialists, and parents of children with cancer - recognized that, in addition to the very best medical care, children with cancer and their families need financial and emotional assistance to cope with the overwhelming challenges of this insidious disease.
http://www.tomorrowfund.org

SymbolWorld - SymbolWorld is a website created by Widgit Software specifically for symbol users. It has material for all ages and includes news, personal contributions, stories and learning materials. SymbolWorld is designed to be easy to navigate, with the option to personalise the layout and colours to suit any reader's needs.
http://www.symbolworld.org

Bookshare - Bookshare's� goal is to make the world of print accessible to people with disabilities. With a dynamic leadership team, dedicated Members and capable partners, Bookshare is making this goal a reality.
https://www.bookshare.org/

Guide Dog Foundation for the Blind, Inc. - Since 1946, the Guide Dog Foundation for the Blind, Inc. has provided guide dogs free of charge to blind people who seek enhanced mobility and independence. Our students come to us from all over the United States and many foreign countries. Our trademark small classes and individualized instruction often attract students who may have special requirements. We have successfully trained hearing-impaired blind people as well as many physically challenged people.
http://www.guidedog.org/

The Early Childhood Technical Assistance Center - The Early Childhood Technical Assistance Center is funded by the Office of Special Education Programs to improve state early intervention and early childhood special education service systems, increase the implementation of effective practices, and enhance the outcomes of these programs for young children and their families.
http://www.ectacenter.org/

Consortium for Citizens with Disabilities - The Consortium for Citizens with Disabilities is a coalition of approximately 100 national disability organizations working together to advocate for national public policy that ensures the self determination, independence, empowerment, integration and inclusion of children and adults with disabilities in all aspects of society.
http://www.c-c-d.org/

Wright's Law - Parents, educators, advocates, and attorneys come to Wrightslaw for accurate, reliable information about special education law, education law, and advocacy for children with disabilities.
http://www.wrightslaw.com/

Able Play - Play products for children with special needs.
Researched - Rated - Reviewed
http://www.ableplay.com/

DARRELL GWYNN FOUNDATION - To be the most effective voice and most vocal advocate for public AWARENESS of the causes of Spinal Cord Injury and PREVENTION of those injuries throughout the world, while providing SUPPORT for those already afflicted with spinal cord injuries. DGF will support like minded organizations researching a CURE for paralysis.
http://darrellgwynnfoundation.org/index.htm

Christopher & Dana Reeve Foundation - The Christopher and Dana Reeve Foundation is committed to raising funds to support research on spinal cord injury and to improving the quality of life of people living with paralysis.
http://www.christopherreeve.org

Child Care Plus - OUR MISSION is to share knowledge, foster skills, and encourage attitudes that promote inclusion as a core component of excellence in early childhood. To accomplish this mission, we: Strive to expand child care options for children with disabilities and their families. Provide training and technical assistance for child care providers and other early childhood professionals (including specialists in early intervention and special education). Seek to improve the quality of the child care experience for all children.
http://www.ccplus.org/

Best Buddies - When people with IDD are unable to attain or maintain a job, it is most often due to an absence of social skills rather than an inadequacy to perform the work required. Best Buddies introduces socialization opportunities and job coaching, providing the necessary tools for people with IDD to become more independent and, consequently, more included in the community.
http://www.bestbuddies.org/

Apps for Autism - Autism resource featuring advocacy, family services, research news and many others. This link will take you to the apps for autism page. Apps for communication, behavioral, learning activities and many more...
http://www.autismspeaks.org/autism-apps

The International Dyslexia Association - (IDA) is a non-profit organization dedicated to helping individuals with dyslexia, their families and the communities that support them.
http://www.interdys.org/

Education-A-Must Inc - Is a nonprofit corporation providing advocate services for the child or youth with physical, emotional, behavioral, or learning disabilities.
http://www.education-a-must.com/index.php

LOCKS OF LOVE - Locks of Love is a public non-profit organization that provides hairpieces to financially disadvantaged children in the United States and Canada under age 21 suffering from long-term medical hair loss from any diagnosis.
http://www.locksoflove.org

Friendship Circle App Review - Provides a place were people can find great apps for children with special needs. With so many special needs apps now available it has become exceedingly difficult to find a site that makes it easy to search and browse for the perfect app.
http://www.friendshipcircle.org/apps/

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