Government Resources

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Child Disability Starter Kit - Contains a fact sheet and Q&A section, check list of documents and information you'll need for the disability interview, and a worksheet that can help you to prepare for the disability interview or complete the Child Disability Report on the Internet. It lists the information that we will ask you about your child and provides space to write down this information.
http://www.ssa.gov/disability/disability_starter.htm

Listing of Impairments - Childhood - The following sections provide medical criteria for the evaluation of impairments of children under age 18 (where criteria in Part A - Adult listings do not give appropriate consideration to the particular disease process in childhood).
http://www.ssa.gov/disability/ChildhoodListings.htm

Child Disability Report - You can complete the Child Disability Report online but you must contact SSA to complete the SSI application. The SSI application can't be completed online. You can apply in person or over the phone, or get more information about SSI and this application process.
https://secure.ssa.gov/apps6z/i3820/main.html

Applying in Person or Over the Phone - You can contact SSA at: 1-800-772-1213 or If you are deaf or hard of hearing, call our toll-free "TTY" number, 1-800-325-0778.
If you have a working printer, you may print a paper Disability Report - Child from the Internet. This form is in Portable Document Format (PDF) and requires Adobe Reader to open and print it.
https://secure.ssa.gov/apps6z/i3820/main.html

SSI rules about disability - An excerpt: If your child's condition(s) results in "marked and severe functional limitations" for at least 12 continuous months, we will find that your child is disabled. But if it does not result in those limitations, or does not result in those limitations for at least 12 months, we will find that your child is not disabled.
http://www.ssa.gov/pubs/10026.html#a0=0

Rebuilding Together - Rebuilding Together provides critical repairs and renovations for low-income homeowners across the United States, and has done so for almost 25 years. We believe that Every Person Deserves to Live in a Safe and Healthy Home.
http://rebuildingtogether.org/

AbleData - "AbleData provides objective information about assistive technology products and rehabilitation equipment".
http://www.abledata.com

Patient Advocate Foundation - The Patient Advocate Foundation is a national non-profit organization that serves as an active liaison between the patient and their insurer, employer and/or creditors to resolve insurance, job retention and/or debt crisis matters relative to their diagnosis through case managers, doctors and attorneys.
http://www.patientadvocate.org

ZERO TO THREE - "ZERO TO THREE is a national, nonprofit organization that informs, trains, and supports professionals, policymakers, and parents in their efforts to improve the lives of infants and toddlers. Our mission is to promote the health and development of infants and toddlers."
http://www.zerotothree.org/

National Parent Technical Assistance Center - "The National Parent Technical Assistance Center provides Parent Centers with innovative technical assistance, up-to-date information, and high quality resources and materials."
http://www.parentcenternetwork.org/

Personal Assistance Services - "PAS - also known as personal attendant services, attendant care services, personal care assistance and personal care services (PCS) - include "people or devices that assist a person with a physical, sensory, mental, or cognitive disability with tasks that the person would perform for himself or herself if he or she did not have a disability". In other words, it includes a range of assistance provided to persons with disabilities and chronic conditions, which enables them to accomplish tasks that they would normally do for themselves if they did not have a disability". Something to note here, they have information pertaining to receiving funds for caregiver services (including tending for disabled children)
http://www.pascenter.org

Early Childhood Comprehensive Systems - "Early Childhood Comprehensive Systems grants help states and communities to build and integrate early childhood service systems that better meet the needs of children and families."
http://mchb.hrsa.gov/programs/earlychildhood

CDC.gov - Is your online source for credible health information and is the official Web site of the Centers for Disease Control and Prevention (CDC). CDC is committed to achieving true improvements in people's health. CDC applies research and findings to improve people's daily lives and responds to health emergencies-something that distinguishes CDC from its peer agencies.
http://www.cdc.gov/

Benefits Check Up - BenefitsCheckUp asks a series of questions to help identify benefits that could save you money and cover the costs of everyday expenses. After answering the questions, you will get a report created just for you that describes the programs you may get help from. You can apply for many of the programs online or you can print an application form.
http://www.benefitscheckup.org/

National Center on Birth Defects and Developmental Disabilities (NCBDDD) - The National Center on Birth Defects and Developmental Disabilities (NCBDDD) is part of the federal Centers for Disease Control and Prevention. It provides useful information for families on child development, developmental screening, parent tips, and research, as well as an A to Z list of specific conditions in young children. It also has information in Spanish.
http://www.cdc.gov/ncbddd/index.html/

National Institute for Early Education Research - The National Institute for Early Education Research supports early childhood education initiatives by providing objective, nonpartisan information based on research.
http://www.nieer.org



Government Resource Page

This page contains information pertaining to federal and state resources, as well as, a number of important national organizations that will be of interest to those in need. How to apply for benefits, when to apply, and where to apply. Topics include: Social Security Disability Insurance (SSDI), Supplemental Security Income (SSI), state disability benefits, resources for each state and many others.

Benefits For Children With Disabilities - This booklet is for the parents, caregivers or representatives of children younger than age 18 who have disabilities that might make them eligible for Supplemental Security Income (SSI) payments.
http://www.ssa.gov/pubs/10026.html

Benefits For Children With Disabled Parent - About 4.4 million children receive approximately $2.5 billion each month because one or both of their parents are disabled, retired or deceased. Those dollars help to provide the necessities of life for family members and help to make it possible for those children to complete high school. When a parent becomes disabled or dies, Social Security benefits help to stabilize the family's financial future.
http://www.ssa.gov/pubs/10085.html#a0=-1

Benefits For Children With Disabled Parent (How much can a family receive) - Within a family, a child may receive up to one-half of the parent's full retirement or disability benefit, or 75 percent of the deceased parent's basic Social Security benefit. However, there is a limit to the amount of money that can be paid to a family...
http://www.ssa.gov/pubs/10085.html#a0=4

Medicare and Medicaid for Children - Medicaid is a health care program for people with low incomes and limited resources. In most states, children who get SSI payments qualify for Medicaid. In many states, Medicaid comes automatically with SSI eligibility. In other states, you must sign up for it. And some children can get Medicaid coverage even if they do not qualify for SSI. Check with your local Social Security office, your state Medicaid agency, or your state or county social services office for more information.
http://www.ssa.gov/pubs/10026.html#a0=4

Children's Health Insurance Program - The Children's Health Insurance Program (CHIP) provides health coverage to nearly 8 million children in families with incomes too high to qualify for Medicaid, but can't afford private coverage. Signed into law in 1997, CHIP provides federal matching funds to states to provide this coverage.
http://www.medicaid.gov/Medicaid-CHIP-Program-Information/

Head Start - Head Start is a federal program that promotes the school readiness of children ages birth to five from low-income families by enhancing their cognitive, social, and emotional development.
http://eclkc.ohs.acf.hhs.gov/hslc/hs

Center for Early Childhood Mental Health Consultation - Head Start families are their children's most important source of healthy social and emotional development. Mental health for babies starts with a caregiver who is "there, aware and cares."
http://www.ecmhc.org/materials_families.html

Administration on Intellectual and Developmental Disabilities - AIDD Program and Project Contacts Information by State and Territory
http://www.acf.hhs.gov/programs/aidd/resource/dd-program-contacts

Family, Friend and Neighbor Care in Early Head Start - Strengthening Relationships and Enhancing Quality. The booklet explains the need for home visits from Head Start. Very good booklet (pdf format)
http://eclkc.ohs.acf.hhs.gov/hslc/hs/resources/ECLKC_Bookstore

State Organization - Search by State - Links to state organizations that aid disabled individuals.
http://nichcy.org/state-organization-search-by-state

National Parent Technical Assistance Center - "The National Parent Technical Assistance Center provides Parent Centers with innovative technical assistance, up-to-date information, and high quality resources and materials."
http://www.parentcenternetwork.org/

Bright Futures - "Bright Futures is a national health promotion and disease prevention initiative that addresses children's health needs in the context of family and community. In addition to use in pediatric practice, many states implement Bright Futures principles, guidelines and tools to strengthen the connections between state and local programs, pediatric primary care, families, and local communities. Whether you are a health care or public health professional, a parent, or a child advocate, Bright Futures offers many different resources for your use in improving and maintaining the health of all children and adolescents."
http://brightfutures.aap.org/

RESNA Catalyst Project (state contact) - "The RESNA Catalyst Project is funded to provide assistance to the AT Act Grantees to assist them in increasing awareness, access, acquisition and advocacy to assistive technology (AT) devices and services for consumers with disabilities of all ages."
http://www.resnaprojects.org/allcontacts/statewidecontacts.html

National Early Childhood Transition Center (NECTC) - "The National Early Childhood Transition Center (NECTC) examines factors that promote successful transitions between infant/toddler programs, preschool programs, and public school programs for young children with disabilities and their families. Funding for NECTC comes from the U.S. Department of Education, Office of Special Education Programs."
http://www.hdi.uky.edu/nectc/NECTC/Home.aspx

Technical Assistance Center on Social Emotional Intervention for Young Children (TACSEI) - "The Technical Assistance Center on Social Emotional Intervention for Young Children (TACSEI) helps decision makers, caregivers, and service providers better understand how to use evidence-based practices to improve the social-emotional outcomes for young children with delays, disabilities, or challenging behaviors. TACSEI is a project of the Technical Assistance and Dissemination Network (TA&D), funded by the U.S. Department of Education, Office of Special Education and Rehabilitative Services (OSERS)."
http://www.challengingbehavior.org/


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